Pat Furlong
Company: Parent Project Muscular Dystrophy
Job title: Founding President & CEO Parent Project Muscular Dystrophy
Seminars:
Building a Patient-Driven Informed Consent Process for a Gene Therapy 2:00 pm
• Ensuring that the informed consent process has been built using patient input • Understanding the power of language and how we use it in the context of gene therapy, including expectations and assumptions • How can we be confident that consent is fully informed?Read more
day: Day One
Panel Discussion: What Do Patients Want & Need from Industry? 9:30 am
For any relationship between patients and industry to work, it’s well established that the patient voice needs to be heard. However, implementing this and incorporating that voice into gene therapy development is not always actioned effectively. This panel will discuss: • Fostering collaboration between patient groups and industry • Understanding what patients are looking for…Read more
day: Day One