About Event
Welcome to the 3rd Gene Therapy Patient Engagement Summit
Effectively Incorporating Patient Input Across Gene Therapy Development to Deliver Safe & Meaningful Therapies to Patients
Join the Annual Gene Therapy Patient Engagement Summit to leverage insights, and brainstorm with leading patient-facing voices in the gene therapy space, leaving you with key learnings and insights to applied to your own gene therapy development programs for 2024 and beyond.
The 2023 summit covered:
'Cross-Functional' Cooperation
Explore best practices for working with other departments to maintain the public voice throughout research, development, and commercialization, with insights from BioMarin, uniQure and Novartis
Equity
Promote holistic, equitable care, unpicking the complexities of the informed consent process, promoting diversity in clinical trials, and ensuring patient decisions are well-informed, with insights from CRISPR Therapeutics and Encoded Therapeutics
Clinical Trial Design
Understand the lived experience, needs and expectations of a patient community, integrating the patient voice into an ultimately better-informed clinical strategy, with insights from Spark Therapeutics and Global Genes
Open Dialogues
Establish connections with patient communities to understand key patient concerns, navigate common misconceptions, and explore conveying to patients the risks and unknowns of gene therapies, with insights from Ultragenyx and the National Hemophilia Foundation
Education
Expand your toolkit of accessible, empowering, and tailored educational pieces, designed with input from the patient community, with insights from the ASGCT and CRISPR Therapeutics
