Speakers

Behtash Bahador

Director - Health Literacy

CISCRP

Betsy Bogard

Board Member

Global Genes

Jacose Bell

Patient Advocacy Lead

Spark Therapeutics, Inc

Susan Brisendine

Director, Patient Advocacy

bluebird bio

Thomas Bols

Head

PTC Therapeutics

Bethany Firem

Associate Director, Global Patient Affairs

BioMarin Pharmaceutical Inc.

Lauren Coleman-Bennett

Account Manager

Seques

Matt Chapman

Editor

CISCRP

Mindy Cameron

President

AdvocacyWorks

Nan Doyle

Associate Director, Patient Insights - Rare Diseases Drug Discovery Unit

Takeda

Alison Kujawski

Senior Outreach Manager

American Society of Cell & Gene Therapy

Brendan Hayes

Sr. Director of Education

National Hemophilia Foundation

Daniel Leonard

Senior Director - Global Patient Advocacy

uniQure

Jennifer Helfer

Senior Director, Patient Advocacy & Engagement, Corporate Affairs

Viridian Therapeutics

Lucy Harris

Commercial Lead

Seques

Brian O’Mahony

Chief Executive Officer

Irish Haemophilia Society

Craig Martin

President

Rithm Health

Jean-Pierre Malkowski

Executive Director - Global Patient Engagement Centre of Excellence

Novartis AG

Jennifer McNary

Co-founder and Principal

Canary Advisors LLC

Melissa Penn

Director - Patient Engagement Research & Development

Bayer

Amanda Rohrig

Associate Director, Patient Advocacy

BridgeBio

Andrea Wilkinson

Global Head Patient Engagement

UCB

David Rintell

Head of Patient Advocacy

Bridge Bioscience Corp

Jessica Riviere

Vice President, Global Patient Advocacy & Patient Engagement

Ultragenyx

Sujan Sivasubramaniyam

Head of Medical Affairs and Patient Advocacy, UK & Ireland

CSL Behring

2023 EVENT GUIDE
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