2024 EXPERT SPEAKERS

Amanda Rohrig

Director, Patient Advocacy

BridgeBio Gene Therapy

Behtash Bahador

Director - Health Literacy

CISCRP

Carrie Sacks

Innovation Manager

Novartis

Chrissy Burton

Senior Director Clinical Operations

BridgeBio Gene Therapy

Christine Slater

Associate Director, Patient Recruitment

Editas Medicine

Felice Tsui

Associate Director of Patient Advocacy

Editas Medicine

Isabelle Blomfield

Medical Writer

Seques

Jennifer Helfer

Patient Advocacy & Engagement

Viridian Therapeutics

Jewell Martin

Director US Regulatory Policy

BioMarin Pharmaceutical

Kara Fick

Director - Patient Advocacy & Medical Affairs

Atsena Therapeutics

Karen Utley

President and Co-Founder

International Foundation for CDKL5 Research

Kathleen O’Sullivan-Fortin

Patient Advocate/Co-Founder

ALD Connect

Kristin Voorhees

Director, Patient Advocacy

Ultragenyx

Lauren Coleman-Bennett

Account Manager

Seques

Lesley Milliner

Senior Patient Education Liaison

Spark Therapeutics

Matt Giordano

director

Krystal Biotech

Melissa Penn

Director - Patient Engagement Research & Development

Bayer

Monique Marsh

Associate Director and Head of Qualitative Innovation and Implementation

Trinity Life Sciences

Nan Doyle

Principal

Takeda Pharmaceutical Co. Ltd.

Natacha Raphael

Former Regional Head, Corporate Affairs and Patient Advocacy

Biogen

Pam Rattananont

Director, Patient Advocacy

Novartis

Paul Sommer

Senior Director, Patient Experience & Advocacy

Regeneron Pharmaceuticals

Su Smith

Head of Patient Strategy

Origins

Susan Sikora Brisendine

Director, Patient Advocacy

bluebird bio

Tara Hastings

Patient Engagement Lead, Rare Diseases

Sanofi

Tara Moroz

Senior Director - Gene Therapy Platform, Cross Portfolio, Global Medical Affairs & Rare Disease

Pfizer

Thais McNeal

Senior Director Government & Industry Affairs, Head Patient Advocacy

Ocugen

Tiara Johnson

Global Patient Affairs

BioMarin Pharmaceutical

Wendy Borsari

Associate Director Patient Advocacy

Tenaya Therapeutics

2024 EVENT GUIDE
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