Beyond the Endpoint: Preparing to Support Patients after Gene Therapy

Time: 2:45 pm
day: Day 1

Details:

  • Examining challenges when gene therapy experiences differ from patient expectations or initial informed consent
  • Highlighting the importance of learning from patient experiences
  • Discussing challenges faced by patients in understanding and coping with gene therapy complexities
  • Emphasizing continuous improvement in education, informed consent and long-term follow-up strategies
  • Sharing potential strategies and tactics to maintain engagement and retention in long-term gene therapy follow-up studies 

Speakers: