Bridging the Gap Between Informed Consent and Actual Experiences

Time: 2:00 pm
day: Day 1


  • Examining challenges when gene therapy experiences differ from initial informed consent
  • Highlighting the importance of learning from patient experiences
  • Shedding light on the journey individuals undergo in gene therapy, from eligibility assessments to post-trial realities
  • Discussing challenges faced by patients in understanding and coping with gene therapy complexities, emphasizing continuous improvement in education, informed consent and long-term follow-up strategies