Beyond the Endpoint: Preparing to Support Patients after Gene Therapy
Time: 2:00 pm
day: Day 1
Details:
- Examining challenges when gene therapy experiences differ from patient expectations or initial informed consent
- Highlighting the importance of learning from patient experiences
- Discussing challenges faced by patients in understanding and coping with gene therapy complexities
- Emphasizing continuous improvement in education, informed consent and long-term follow-up strategies
- Sharing potential strategies and tactics to maintain engagement and retention in long-term gene therapy follow-up studies
