Exploring how to Adapt the Engagement Strategies in Communities Potentially Resistance to Gene Therapies
Time: 11:00 am
day: Day 1
Details:
- Explore the unique challenge of addressing potential resistance within the Deaf and Hard of Hearing (DHH) community towards gene therapy and the concept of a “cure.”
- Discuss the delicate balance of advancing gene therapy initiatives while respecting the wishes of those who do not believe in medical intervention for hearing loss
- Emphasize the importance of diversity in advisory boards, including everyday individuals, parents, Deaf and Hard of Hearing adults, and professionals with various experiences
- Discuss the ongoing efforts to bridge the gap between gene therapy initiatives and the preferences of the DHH community
