Exploring how to Adapt the Engagement Strategies in Communities Resistance to Gene Therapies

Time: 11:00 am
day: Day 1


  • Explore the unique challenge of addressing resistance within the Deaf and Hard of Hearing (DHH) community towards gene therapy and the concept of a “cure.”
  • Discuss the delicate balance of advancing gene therapy initiatives while respecting the wishes of those who resist
  • Emphasize the importance of diversity in advisory boards, including everyday individuals, parents, Deaf and Hard of Hearing adults, and professionals with various experiences
  • Discuss the ongoing efforts to bridge the gap between gene therapy initiatives and the preferences of the DHH community