Precision Communication in Gene Therapy: Crafting a Shared Language for Real-World Impact

Time: 9:00 am
day: Pre-Conference Day


Effective communication in gene therapy is crucial for ensuring patient understanding, building trust, and managing expectations to ensure successful shared decision making.

This workshop delves into the intricacies of gene therapy terminology, exploring collaborative efforts to establish a shared glossary and redefine language to align with realistic goals.

Attend this session to:

  • Discuss the importance of health literacy in gene therapy communication
  • Explore the need for a comprehensive glossary of communication terms in the gene therapy field
  • Discover the potential role of industry and patient advocacy organizations in collaboratively shaping and disseminating this glossary
  • Debate the historical impact of the term “cure” and proposing alternative language for realistic goals in gene therapy contexts
  • Delve into strategies for industry collaboration with patient-focused groups to develop and implement agreed-upon language