Jennifer Helfer
Company: Encoded Therapeutics
Job title: Most Recently Head Patient Advocacy & Engagement
Seminars:
Working Together on the Design of Clinical Trials 2:00 pm
• Learning from natural history and registry data • Working with various stakeholders and means to collecting insights • Aligning trial design across regulators, researchers, investigators, and patient communitiesRead more
day: Day Two PM
Finetuning the Informed Consent Procedure 2:30 pm
A hallmark of an ethical gene therapy program is in the informed consent process. While the potential ramifications of introducing new genetic materials require a patient to have comprehensive understanding of risks involved, numerous factors must be considered, and approaches tailored around. Language barriers, differing healthcare literacies age, and decision drivers are just a few…Read more
day: Pre-Conference Day