Kathleen O’Sullivan-Fortin

Company: ALD Connect

Job title: Patient Advocate/Co-Founder

Seminars:

Beyond the Endpoint: Preparing to Support Patients after Gene Therapy 2:45 pm

Examining challenges when gene therapy experiences differ from patient expectations or initial informed consent Highlighting the importance of learning from patient experiences Discussing challenges faced by patients in understanding and coping with gene therapy complexities Emphasizing continuous improvement in education, informed consent and long-term follow-up strategies Sharing potential strategies and tactics to maintain engagement and…Read more

day: Day 1